The European Academy of Childhood Disability is collaborating and partnering up with a number of other organisations! Please find below a non-exhaustive list of our Global and European partners. Please click here to find out more about our partners at National level
The mission of the International Alliance of Academies of Childhood Disability (IAACD) is to improve the health and well-being of children, young people and adults with childhood-onset disabilities around the globe by enhancing local multidisciplinary professional capacity and expertise through an international collaboration between academies.
The American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) is one of the global leaders in the multidisciplinary scientific education of health professionals and researchers dedicated to the well being of people with and at risk for cerebral palsy and other childhood-onset disabilities. AACPDM aims to provide multidisciplinary scientific education for health professionals and promote excellence in research and services for the benefit of people with and at risk for cerebral palsy and other childhood-onset disabilities.
The Australasian Academy of Cerebral Palsy and Developmental Medicine (AusACPDM) aims to provide multidisciplinary scientific education for health professionals and to promote excellence in research and best practice clinical care for children and adults with cerebral palsy and developmental conditions. AusACPDM is committed to advancing understanding & awareness of evidence based practice for children and adults with cerebral palsy and developmental conditions in the Australasian area and beyond.
Mac Keith Press aims to improve the care of children with neurodevelopmental disability by extending the knowledge and understanding of developmental medicine and paediatric neurology. They publish the field-leading journal, Developmental Medicine & Child Neurology, and books and courses in related subject areas. Their publications are of interest to researchers, health professionals, clinicians, therapists, parents and all involved in the care of children and young people with neurodevelopmental conditions. EACD Members enjoy 20% off books and courses from Mac Keith Press.
The Elsass Foundation is a private foundation from Denmark working to improve the quality of life for people with cerebral palsy (CP) and their families. The Elsass Foundation works across a wide range of areas, including research, knowledge dissemination, developing activity programmes and providing funding to institutions, associations and individuals. The foundation was established in 1975 following a donation by Helene Elsass, who had CP. Her wish was to establish a foundation that could help others with cerebral palsy to the greatest extent possible. The Elsass Foundation is a proactive foundation which strives to keep abreast of the latest research and knowledge in the field of CP. All activities are structured so as to revolve around our mission to improve the quality of life for people with cerebral palsy (CP). One of the primary goals is to help ensure that people with cerebral palsy attain the greatest possible level of independence and autonomy.
La Fondation Paralysie Cérébrale is recognised under French law as a public benefit organisation, and aims to gather and share information on research in the field of cerebral palsy. It helps to publicise major needs and achievements, being a forum for discussion and a platform to raise awareness of Cerebral Palsy, and it sets up regular meetings at which care professionals can share state of the art knowledge and experience. La Fondation Paralysie Cérébrale can play an important role by understanding both what is needed and the means that are available or emerging. Its role can span information, evaluation and instigation. In this way it can help leverage the available resources to levels of achievement that would be otherwise unattainable.
The European Paediatric Neurology Society (EPNS) is a society for physicians with a research or clinical interest in Paediatric Neurology. It is a rapidly growing group of like-minded active professionals who are committed to improving standards of care of all children with suspected neurological problems and to collaborating on training, continuing medical education and research.
The European Reference Network for Rare Neurological Diseases (ERN- RND) aims to address the unmet needs of more than 500,000 people living with RNDs in Europe. 60% of those are still undiagnosed. Through coordination and knowledge transfer, ERN-RND aims to establish a patient-centered network to address the needs of patients with RND of all age groups, with or without a definite diagnosis, by implementing an infrastructure for diagnosis, evidence-based management, treatment and collection of patient data.